The good news is that Annabelle hasn't had anymore VTAC (serious arrhythmias of many extra heartbeats) since around 10:30 this morning. Dr. Reed, the attending MD, decided to change Annabelle's medication from propanolol to sotalol yesterday. She has had 2 VTACs since the change. At rounds this morning, he decided to up her another 50% on the sotalol to try to keep her from having any VTACs. She gets this new medication 3 times a day. So far, it seems to be keeping the VTAC episodes away. We still continue with daily EKGs to make sure that she is not having any bad side effects to this new medication.
Feeding is still an issue. Little Miss Priss is smarter than most almost 3 week olds and seems to have figured out that she can just play opossom during the bottle feeding knowing the rest will just come on down the tube. So, she still hasn't gotten past 8cc's out of a bottle. This is a huge issue for her right now. She times out around 10 minutes and falls asleep. HLHS babies biggest post-op problem is usually feeding. Her endurance is very low. So, eating for her is like trying to run a marathon with half a heart. Please pray for her to get this bottle feeding down! A permanent G tube was mentioned to us today if her bottle feeding doesn't improve by the end of the week. Pray that she make progress and can figure out this new concept. (She does make the cutest little faces trying to figure what all this eating and sucking is about. It is really comical!)
Another prayer request that I would like to ask of you is to include Julianne (see link to her website on the right) in your prayers. She also has HLHS and is having her second surgery this week. Her story has been so inspirational to our family and has truly helped us through the pregnancy with Annabelle. God has used this precious child and her mom and dad to be encouragers and absolute blessings.
We will work on posting some more pictures tomorrow...