We are still waiting on a room on the "floor". Annabelle is ready to move but all the rooms are full on 7C & PCICU won't send her to another unit since 7C is specifically for pediatric cardiac patients. So, we're still waiting... I was a little disappointed that we didn't get moved yesterday since we had waited over the weekend but I know it's best for Annabelle to stay in PCICU (especially since the care is so wonderful there). I was really looking forward to spending our first night together. God continues to teach me patience through all of this.
Annabelle is doing welll with her feeds. They have compressed her to 1 hour feeds (which means she is getting what she used to get over 3 hours in 1 hour). They are going to try to get her down to 30 minutes today. She has a swallow study today at 2pm so please pray that it goes well and that she not aspirate. Since Annabelle has never taken anything by mouth, the speech therapist is going to watch her swallow a little bit of barium out of a bottle to see where it goes...hopefully down her throat to her belly and not to her lungs. If the swallow study goes well, then we can look at trying to give her a bottle. She sucks a little on her pacifier but gets tired very quickly. Also, she was put on prevacid and zantac for her reflux. She didn't have quite as many spit ups yesterday so hopefully it's working, too. We were told that it is very common for heart babies to have reflux. Just another hurdle to cross.
On a very positive note, I got to give Annabelle a "bath" last night for the first time! We had left the hospital to go to dinner and I just had to go back after we had eaten. So, Scott and Wyatt came back to the house to get Wyatt to bed and my Daddy took me back to the hospital. Just as I was walking in, Annabelle's nurse asked if I would like to give her a bath. She was getting everything together so I dove right in and did the whole thing myself. Annabelle cried through just about all of it. I told her that before too long she's going to be splashing around in our tub like her big brother. She wasn't amused. Then, I got to bundle her up and rock her to sleep for the night. It was so precious! Lord knows that I needed that time with her last night. One of the hardest things about all of this is my not being able to mother her as much as I want to. I have had my hands tied as to what I can and cannot do and that is very difficult after just giving birth. I know it's for the best right now but as soon as I get her to myself that little girl is never going to be put down!