Friday, August 24, 2007

August 23, 2007

Today our baby girl was diagnosed with Hypoplastic Left Heart Syndrome. We are a little over 16 weeks pregnant with her. HLHS is a very serious and fatal congenital heart disease. It must be treated at birth. As we visited the pediatric cardiologist (Dr. Shuler), we learned the severity of it. We were given three choices as to our baby's future: 1- heart transplant upon baby's birth 2-3-Stage Surgical prodcedures (first surgery within first week of life, second surgery at 4-6 months of life, and third surgery between 2-4 years old), 3- the option of terminating the pregnancy. We have chosen to carry the child that God has given us and have the 3-Stage Surgical procedures done. We never thought that we would have to make a decision anything like that one. We have been blessed with a healthy 3 year old son and expected this baby to be the same. We are dealing with a wealth of emotions and taking each hour as it comes. We know that the Lord has performed at least one miracle in this type of situation in the past and are asking Him to reveal His power to us by healing our daughter's heart. Prayerfully, the surgeries will not be necessary. Please join us in praying for a miracle in our baby's heart. We return to the pediatric cardiologist in three weeks and will continue updating the blog. We are being carried on the wings of prayer and know our daughter will be healed!

7 comments:

Heather said...

We are praying for you!
Heather and Bryan Jones

Jessica said...

Hi! My name is Jessica. On April 30th this year our baby girl was diagnosed with HLHS at the 20 week ultrasound. That was probably the hardest day of our lives, so my heart is with you. My husband and I live in New Orleans but I'm now in Boston awaiting the birth and surgery of our baby. I will definitely keep your family and baby girl in my prayers. I'm certain God will guide your footsteps as He has ours.

The Hardy Family said...

What a great way to keep us posted on your sweet baby girl. You have been in my thoughts and prayers and will continue to be!
Love,
Lea

Jennifer said...

We are always thinking and praying for you both, and this is a great way to share new info about that sweet baby girl! Can't wait to hear what her name will be!
Love~Jennifer and Michael Schulz

Operadiva said...

This is a great site. We alone know what prayer can do as sick as our two were at their births. We are praying for you and can't wait to see pictures of your precious little girl. Please let us know if you need anything.

jc said...

Rebecca and Scott: I am praying for you all the time...I love you guys...Keep being strong. God has a plan for your life!

Pam said...

Rebecca, Scott, Wyatt and Baby Girl. Our hearts go out to you all. We will keep you in our daily prayers for God to heal Baby Girl's heart and to give you continuous hope and strength to get through this difficult time. We love you.
Pam and Greg